There are numerous foundations and associations dedicated to supporting individuals and families affected by Marfan syndrome. These organisations are a valuable source of information and practical and emotional support.
| Country |
Organisation |
Website |
| Argentina |
Marfan Argentina |
www.marfan.org.ar |
| Victoria, Australia |
Marfan Association Victoria Inc. |
www.marfanvic.org.au
|
| New South Wales, Australia |
Marfan Support Group |
www.marfan.net.au |
| Belgium |
Association Belge du Syndrome de Marfan |
www.marfan.be |
| Brazil |
The Fundação Marfan Brasil – (Brasil Marfan Foundation |
www.marfan.com.br/ |
| Canada |
Canadian Marfan Association |
www.marfan.ca |
| Denmark |
Danish Marfan Association
|
www.marfan.dk |
| Finland |
Finnish Marfan Association |
www.marfan.fi |
| France |
Association Française du Syndrome de Marfan (A.F.S.M.) |
www.vivremarfan.org |
| Germany |
Marfan Hilfe (Deutschland) e.V. |
www.marfan.de |
| Ireland |
Marfan Syndrome Support Group Ireland, Ltd |
www.marfan.ie |
| Italy |
Associazione Vittorio |
www.marfan.info |
| Japan |
Marfan Network Japan (MNJ) |
www.marfan.gr.jp
(Japanese only) |
| Japan |
Marfan Association (JAMAA) |
www.marfan.jp |
| Mexico |
Sindrome de Marfan de Mexico A.C. |
www.marfan.org.mx |
Netherlands
|
Contactgroep Marfan Nederland |
www.shhv.nl |
| Norway |
Marfanforeningen co/FFO |
www.marfan.no |
| Peru |
La Asociación Peruana del Síndrome de Marfan (APSIM) |
www.marfanperu.org |
| Poland |
Polish Marfan Association |
www.marfan.pl |
| Singapore |
Yahoo! Group for Singaporeans who have Marfan Syndrome |
health.groups.yahoo.com/group
/marfan_syndrome_sg/ |
| Slovakia |
Slovak Marfan Association
|
members.fortunecity
.com/marfan |
| Spain |
SIMA Asociación de Afectados Síndrome de Marfan |
www.marfan.es |
| Sweden |
Svenska Marfanföreningen |
www.marfanforeningen.se |
| Switzerland |
Marfan Stiftung Schweiz |
www.marfan.ch |
| United Kingdom |
Marfan Association UK |
www.marfan-association.org.uk |
| United States |
National Marfan Foundation |
www.marfan.org |
